We thought she was progressing most of the day and then she had 4 seizers this afternoon. I couldn't watch it. The doctors say that until all of the TTP bad plasma is out of her system, she could continue to have more seizers. They increased her anti-seize medicine and continue to flush her blood and plasma. Very hard to sit there and look at my little girl. Thanks for your thoughts and prayers.

Pap

Best wishes to you and your family.

Can't imagine what you folks are going through Mike...but I know there are a batch of "us" pulling for all of you.
God Bless, Capt. Chris

Thanks for all the thoughts and prayers. My son has started a blog for those that wish to keep up with Terry's progress. Go to www.carepages.com , and look up terrydeeelmore . Once you register you can read the latest. Again, we thak you all so much for your support and prayers.

Pap

Pap--

We are all pulling for your daughter and you.

Being curious, and married to an RN which has exposed me to the medical profession, I ran a search on TTP to learn more about it. For those who might like to know more, here is a link that has a good description of the condition in pretty much layman's language.

http://www.nhlbi.nih.gov/health/health-topics/topics/ttp/

Best wishes,
Larry

Larry, thanks for the link, it was very informative. I sent it to the carepages blog and some close friends as well. The doctors say she is in for a long recovery period and plasma changes almost daily for 8 weeks. We are so greatful for all of the prayers and kind posts here on the forum. Can't thank you all enough.

Pap

Pap,
my best wishes to you and your family.
Peter

Pap, all of you will be in my prayers ......all the time; I haven't even had time to look at e-mail or this forum for a while and had no idea your girl was so ill.
Your baby girl is always your baby girl and I know you're hurting like never before.
God bless and watch over you all. Whatever can do to help, let us know.

This is such a rollercoater, I am having a very difficult time being strong. My little girl is having very, very bad hallucinations. At this point it is hard to determine if they are from the TTP or the medicines they are giving her. When you read about Haldol and Adavant(?), it's almost like they cause as many side affects as the cure. Sometimes Terry is responsive to commands, but most of the time she is in a whole different world. Like one nightmare after another. Her little hands move like she is doing some task but nothing is there. I rub her back and legs and she seems to enjoy that. We have shown her some newspaper headlines and she can read most of the words. She failed her swallow test and has not had any liquid food in her stomach since they took the breathing tube out. Her bloodshot eyes are getting some better. When she had her seizers, she broke a number of them in her eyes. Her red platelets count went down from 38 to 29 yesterday. Normal is 150. We are praying they will go back up again. The doctor said that she will be in ICU for at least 5 more days and maybe longer depending on her progress. When you see Terry in this state, it at first is a little comical since we all know how smart and organized she is, then you realize how devistating it is for her brain to be going through all of these hallucinations. One wonders how much of this her brain can take without doing some damage. I am praying the Lord gives us back our Terry Dee just the way she was in both mental and physical health. Also please pray for me as I really need the strength. Thanks.

Pap

Mike, having a daughter, I can't imagine what you are going through, but I can assure you, she knows you are there and caring for her.

Stay strong my friend..... you have a lot of people pulling for her....and you.

Mitchell